Thursday, 12 October 2017

My MS Journey - A Life Living with MS

On 23 January 2017, Mal Kiely was diagnosed as having "mild MS" (Multiple Sclerosis, a disease of the nervous system)
NOTE: This is not a "pity-party/woe-is-me" thing, as I'm simply sharing a very brief insight into some of the reasons as to why I may act so "up-and-down" from time to time.

This page is an index of my attempts to
blog-diarize my journey with MS

Who Am I? What is MS, and how does it affect me? What does it mean? I don't know what I should say to you, Mal Typos
My MS Symptoms MS Bloggers MS Twitters Archives
My other health issues Blogging Without Obligation MS Information A Balancing Act

#MS #MultipleSclerosis #ChatMS #LiveWiseMS #MSAwareness
#MSlife #LivingwithMS #CureMS #MSWarriors #MSFamily #MSPals #Thankful
#MSSucks #MSproblems #MSisBS
@MustStopMS @MS_Australia @shiftms @voicesofms
@msgetinvolved @KISSGOODBYEAUS @mssocietyuk

MS Blog Post Categories
Advice, Positives &  Encouragementt Emotions Humour Music Re-Posts Symptoms
Articles Family Medications Ponderings Sleep Weather
Diet Hospital Guys with MS Networks Socializing & Friends All MS Posts

Peas be with ewe 

Things to put in your 'Hospital Bag'

Article: 18 Things to put in your Mental Health Kit

I have a bag packed, just in case in need to go into hospital suddenly. I have most of these things on this list in there, ready to go... but I'd like to add these, too!

(*) List of medical conditions and current medications (saves a lot of hassle when first admitted!)
(*) Current medications (from fridge)
(*) A change of clothes/undies
(*) Plastic bags
(*) USB charger plug adaptor
(*) Phone AND changer
(*) MP3 player, headphones & USB charger lead
(*) An exercise book and plenty of pens - keep track of thoughts, journal, etc.
(*) I would want to take my teddy bear 'Edward' with me, but for fear of him becoming lost, I leave him at home, sitting on my bed. He understands.
(*) A pack of playing cards. Solitaire for the win.
(*) Books to read - I always have an assortment of paperbacks (humour/silly) to while away the time... let's admit it - most time spent in hospital is spent waiting!
(*) A sleep-mask... I used a folded bandanna for this purpose, to keep the daylight out during day naps.
(*) Toiletries - incl. shampoo, conditioner, toothpaste/brush, hair brush, hair eleastics, mouth wash.
(*) A colouring book and colour pencils - a good idea (but I may use it a bit later, saving bag-space at first).

Peas be with ewe 

Monday, 9 October 2017

MS Fatigue

Sometimes, my MS makes me feel extremely fatigued... the sort of mental and physical tiredness / weariness / exhaustion that doesn't necessarily go away after a good sleep. Not always sleeping well doesn't help me in that regard, either.

It's awful, as this disfunction prevents me from participating in life, and I miss out on a lot of people/things I enjoy in my life.

I despise becoming 'unreliable', but there's nothing I can do about it.
  • lethargy
  • weakness
  • exhaustion
  • weariness
  • dullness
  • exhaustion
  • feebleness
  • heaviness
  • listlessness
  • overtiredness
  • beat
  • bushed
  • spent
  • wasted

What to show your doctor (Source)

Sometimes, I get a slight headache with it all, as well.

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Peas be with ewe